Personal data is identifiable information about living people. We collect personal data to help us carry out our statutory role as the Parent Carer Forum for parents and carers of children and young people aged 0-25 with additional needs and/or disabilities in Suffolk, and to be a good manager of volunteers.
We are telling you about this because it is our responsibility to stay within the Data Protection Act 2018 and GDPR rules. To find out more about these laws and your rights go to The Information Commissioner’s Office (ICO)’s website.
Click here to visit the ICO website.
Our approach to privacy and personal information in general
In relation to your privacy you have these rights:
Information we collect
Here is a list of the personal data we collect, how and why.
If contact with our service is made by telephone, people will be asked to verbally indicate their consent for us to store information about them and a record of this consent will be maintained.
Sharing of personal data with Healthwatch Suffolk in no way negatively impacts your rights.
Information we pass on to other organisations
We work with the National Network of Parent Carer Forums (NNPCF), Healthwatch Suffolk, the Care Quality Commission (CQC), local commissioners, our local authority, and the East and West Suffolk Alliances, to improve the quality and safety of education, health and care services.
In normal circumstances any data we pass on to them is anonymous. If it is not anonymous, this would be because we have your consent to share the information, or where there is another very good reason to make the disclosure – for example, we may disclose information to CQC or a local authority where we think it is necessary to do so in order to protect a vulnerable person from abuse or harm.
Getting help about your privacy and rights
If you think we may hold personal data relating to you and want to see it please write to firstname.lastname@example.org.
If you know that we are holding your personal data and believe that it may be wrong, or if you want it to be deleted or for us to stop using it, you have a right to request that it can be deleted or amended. Please make your request in writing to email@example.com. Or send it by post to Suffolk Parent Carer Network, Brightspace, 160 Hadleigh Road, Ipswich, IP2 0HH.
If you feel that we have not met our responsibilities under data protection legislation, you have a right to request an independent assessment from the Information Commissioner’s Office (ICO). You can find details on their website.
Our contact details and key roles
Suffolk Parent Carer Network is data controller for all of the personal data that you provide us with. Any issues relating to the processing of personal data by or on behalf of Suffolk Parent Carer Network may be addressed to Suffolk Parent Carer Network, Brightspace, 160 Hadleigh Road, Ipswich, IP2 0HH. You can also call us on 07341 126455 or send an email enquiry to firstname.lastname@example.org.